My Unexpected Little Blessing

The surprise of a baby with Down syndrome – the story begins at the bottom of this page.

So Many Firsts

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 So I have been underestimating the amount of time that I have……..as it has been 3 months since my last post. So needless to say, I have a lot to cover in this one. For starters, the above picture is my little sweet pea ready to go to her very 1st Halloween party. Isn’t she the cutest little ladybug you have ever seen?? I can’t get enough of this little girl. And as usual, she was the hit of the party. She has a group of people fawning over her everywhere we go. (Not that we mind!) Sometimes I feel guilty for thinking this, but sometimes I can’t help my thoughts, and I will begin wondering, “Would these people feel the same way about her if they knew that she had Down syndrome?”. I feel terrible that this thought crosses my mind. But it does. And then I have to swat it away in a hurry. Because I have promised myself that I will not lose out on a second of my daughter’s childhood, to think about what others are thinking, or not thinking. I cannot however, pretend for one second that this is an easy task. Because it isn’t. And in all honesty, the thought is warranted. The abortion rate is as high as it is because to some, there isn’t as much value in a child with a disability. There is a misconception about these individuals, and I am hoping that I can play a part (even if only a small one) to change that. There is so much value in my Regan!

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Regan is doing well with feeding. We began introducing her to solid foods, and from what I can tell, she is doing great. She keeps most of the food in her mouth, and does not seem to thrust her tongue out as is common with children with Down syndrome. Overall I think that she makes less of a mess than most babies I have seen being fed, and she does it with a smile too! She doesn’t seem crazy about bananas – which she gets from me. But at the same time, those jarred bananas smell funny – so it could just be that. We are trying 2 new fruits and vegetables each week to see how she adjusts to each one. And to make sure there are no allergies. Children with Down syndrome may have more aversions to different foods and textures than would be common with a child without Down syndrome. But so far she seems to be doing very well! And she is stubborn to! When she has reached her end with it – that mouth isn’t opening for anything!

Early November we visited with a Geneticist for the first time. We were receiving many different opinions in the Down syndrome community on whether it was worth it to take Regan. Some people loved the experience, and others did not. Todd and I could not seem to get to the bottom of why the opinions were so different, so we decided to give it a try. We figured we could always stop going later. But after our first visit, we were glad that we made the trip. We have been hearing so many great things about Regan and her progress since she was born, that we had no reason to think that we should be concerned with her development at this stage. But it was very reassuring after the Geneticist told us how wonderful she was doing. Her exact words to us were, “I have been doing this for over 35 years, and it is my job to tell you the truth regarding your child’s development. Regan is doing great!”. We were thrilled! Todd asked her, “What are the chances that our daughter (or anyone with Down syndrome) will be able to drive a car?”. She responded with, “Well……10 years ago if someone had asked me if it was likely their child with Down syndrome would go to college, I would have had to be honest and say that it was only a small chance. But now it is happening much more regularly. Same goes for driving. There is no way to know for sure, but the chances are increasing. So just keep doing what you are doing.”. And that is exactly what we are going to do!

“I may never be perfect, but I will always be unique!”

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