My Unexpected Little Blessing

The surprise of a baby with Down syndrome – the story begins at the bottom of this page.

2 Months & Going Strong

on September 22, 2012

At 2 months old Regan had her first Early Steps evaluation. (This is for kids that have a developmental delay, or a condition that may lead to a developmental delay.) So they played with her and checked to see how she responded to light, sound, movement, etc. And, she did great! She was right on track with normal development. And might I add that she was doing some things that were beyond her age. One proud momma here! (By the way I don’t think I have mentioned that my name is Brandy – just an FYI as you already know the husband and daughter’s names.) Early Steps was not able to offer any therapies to Regan at this point because she did so well. Kind of a Catch 22 – she is doing well and that is great. But, we don’t want her to fall behind either. So I asked them if they would be willing to send an Early Interventionist to our home just once a month to check on Regan, just to see how she is doing. That way if there is one area that she is falling behind in, we could start working on that. They agreed!

Early Steps gave us some ideas of things that we can do to help keep Regan on track with her development, as well as things to help increase her muscle tone. (Babies with DS are generally born with low muscle tone. Regan’s is a little low compared to a baby without DS, but is pretty good for a baby with DS.) So we have been giving her tummy time to help strengthen her neck and core muscles. (Her neck and tummy muscles seem to be her weakest.) She tolerates tummy time for about 5-10 minutes and then she is done. I hear that is pretty good though! We have definitely seen an improvement in her being able to control her head. She isn’t there yet – but definitely making good progress! But the best thing we see – is the effort she gives it. She is always trying, and we couln’t ask for more than that.

During this month she has been smiling and laughing a ton! If I am having a rough day for whatever reason – that little smile monster can fix it in a hurry! Seriously – it is the best thing ever! I love having this awesome little girl in my life!

“We are not disabled by our disabilites, we are enabled by our abilities.”

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